Eulogy for Nani

For those who do not know me, my name is Rob Marvin, and I am happy to count myself as one of Virginia’s friends ~ and quite possibly, her favorite.

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It’s my hope that Monday, October 17, 2011 will be remembered as the day when a loving family and many friends gathered in defiance of convention to celebrate Mother’s Day … at the time and place of their choosing … in God’s house … at His table … and later, at the cemetery on hallowed ground.

I will personally never forget this incarnation of Mother’s Day when we came together to honor the enduring love of a mother and grandmother, and for others, the life of a friend and neighbor, Virginia.

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As I sat to think about what I would say today, one image of Virginia was foremost in my mind:  She was seated at the head of a large table surrounded by family and friends offering up an insanely large amount of food.

How had I come to sit at this table?

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It must have been difficult for Virginia to sit idle, watching as her three children bore the responsibility of caring for their ailing father over two and one-half years as he languished in a nursing home. 

And while she could do nothing to ease their burden, she was surely proud to see her children acting on the example she had passed along to them over many years: 

Family is everything.

During this time, our families were living parallel lives within the same nursing home; three doors down a common hall from Dominic, our Mother was living out her final days.  And, as with Virginia’s children, we had long ago learned the importance of family in our lives.
When my twin brother, Jim, recently asked Charlie why it was that Virginia had taken to the two of us, his reply was simple:  “Mom didn’t say much but she watched people and took in everything.  She watched you care for your Mother and for my Dad.”

As months became years, all of us, the children of Virginia and Dorothy, were bound by a shared affection for our beloved parents as we did the only thing we knew how to do:  we cared for them.

The love of family is the tie that binds all of us.  Virginia respected this in her children … and in my twin brother and me in turn.

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Since being diagnosed with an incurable brain malignancy little more than four weeks ago, no one left Virginia’s side without being impressed by the living contradiction embodied by this first-generation Italian-American.  Increasingly frail and weakened ~ she remained strong in spirit; eyes hampered by age ~ her vision remained crystal clear; and, in a world of increasingly dizzying complexity ~ she projected herself as a selfless woman of quiet practicality and grace.

When the time came for the physicians, nurses, social workers and family to make plans for her future, it was clear there would be little allowance made for debate: 

Virginia was going home; to her home of 54 years where she raised her children and their children, to the kitchen where so much food was made and shared, and to the familiarity and comfort of her own bed.

Always the Mother, even at 83, Lucille, Joe and Charlie were still children in her eyes ~ even as they navigate through middle age.  It is as if her motherly eyes wouldn’t allow her to see the children grown ~ as if adulthood was the singular province of a mother.

Perhaps it is. 

Or, at least, so it seemed, until the morning of October 12^th ~ when, with Charlie, his dog Lulu as well as a trusted friend and caregiver, Anita, at her side, Virginia slipped quietly into that long, good night.

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Having lost their father only five short months ago, Virginia’s children are now learning, as did my twin-brother and I this past January, that the death of a mother is unique ~ it seems to affect us in ways far different from when our father’s die.

I believe it marks an irrevocable severance with the past ~ as if cutting the umbilical cord that binds our affections, making us grounded in the world.

And, unlike with our father’s, we are intimately and inextricably linked to our mother’s ~ as flesh of their flesh, and blood of their blood.

Yes.  Their childhood died along with Virginia this past week; but, like her, they are to be born again.

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His holiness, the late Pope Paul VI once remarked as to the relationship between Mother’s and their children when he observed,

“Every mother is like Moses.  She does not enter the promise land but prepares a world she will not see.”

Virginia bore two healthy sons and one daughter, and nearly lived to celebrate her 84^th birthday ~ which is tomorrow.  She lived her life preparing Lucille, Joe and Charlie as well as her four grandchildren for an earthly land of promise she will no longer see ~ at least not from THIS vantage point.

But, her Lord assures us that she is now in the heavenly Promised Land alongside her beloved family who had gone on before her.

It is the contradiction of our humanity, the resurrection, and our place in it.

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I will end this Mother’s Day card of sorts, in prayerful reverence of Virginia, my mother, Dorothy, and for all those mentioned silently within your hearts:

“The love of a mother is a veil … of a softer light … between the heart and our Heavenly Father.”

Virginia Ann Cervello is now fully in the light of our Heavenly Father by the redemption freely given by His Son.

And, through the promise of the resurrection, I speak for many when I pray for the day when we will no longer simply be our Mother’s sons or daughters, but united as children of God.

Sweet dreams, Virginia.

Eighteen Hours

I ran through the snowdrifts as fast as my legs would allow.

The interregnum of the prior nine days had been all but too much to bear; the days apart weighed heavily on me.

But I abandoned all the heartache as I plowed through fresh snow blanketing an invisible but well-known path.

Rounding a bend, I made out the silhouette of my twin brother standing under an arcade beyond the head of the trail; he, too, had been anxiously awaiting my return.

“That’s really nice of him to welcome me back!” was my only thought.

But just as we began a short walk along the colonnade to the entrance of the nursing home, my brother stopped, turned abruptly to me and then said,

“Mom is not doing well … she’s not doing well at all.”

A veil of denial immediately enveloped me as I struggled to catch my breath and my legs buckled under the sheer weight of his words.

It was as if I had been punched in the stomach.

It was as if I had been driving a speeding car and then forced to come to a complete stop and reverse directions in the same instant.

Life – as I knew it – was about to be altered irrevocably.

My brain immediately became awash in the panoply of human emotions as well as thoughts too disparate to grasp. But in the midst of all the mental chaos, an eight word sentence – a fateful harbinger spoken to a trusted friend nine days earlier – took hold, repeating itself in an endless loop time and again within my head; it would continue for the next eighteen hours … and beyond.

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“Everyone dies.”

I learned this lesson as a child. All of us do. But to a child, death is merely an abstraction; in the mind of a child, we are all immortal.

Over the years as Mother’s health declined, I will also admit to occasionally fantasizing about how I would react when Death finally came for her.

I don’t believe there is anything strange about this. How many among us has not contemplated such thoughts? Consciously or not, do not the exigencies of Life force each of us to become mentally prepared for nearly all eventualities?

But even with the benefit of nearly five years of introspective preparation for Mother’s death, my brother’s words that morning as we walked along the colonade, forced me to face – head on – an unwelcomed revision of the ill-understood lesson from my callow youth,

There is no good way to prepare;

Mother’s die, too.

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While finally making our way into the nursing home, I do remember being conscious of how quickly the excitement of the morning had turned to trepidation and fear while simultaneously being surprised by an unanticipated calm – or numbness – that came over me. It could very well have been denial; I don’t know. After all, Mother had weathered many storms over the past two and one-half years.

As we reached her room, however, the protective instincts evaporated as quickly as they had emerged. Even though I desperately needed to personally “lay eyes” on Mother, I was not at all certain I was prepared to deal with the probability of this harsh new reality.

As I opened her door, I instinctively knew Mother’s current situation was different from all prior scares; she was surrounded by too many people, both expected and unexpected.

“This is not good.” was my only thought.

I quickly made my way through the crush of uncomfortably silent nurses, aides and family members to come face to face with Mom.

I was shocked.

Whereas nine days before I had sat laughing as Mother interacted cogently with two very surprised hospice nurses – both of whom later went on to make a glowing report, the woman in front of me that Thursday morning was nearly unrecognizable; Mother was unresponsive with her mouth agape, laboring under the burden of oxygen deprivation; her oxygen debt was outwardly manifested by the most foreign and hideous of watery rattles imaginable, presumably precipitated by either an oddly rapid onset of pneumonia or a silent but profound cardiac event.

I acknowledged the truth in that first instant – Mother’s life was rapidly coming to an end.

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My recollections of the ensuing eighteen hours are a blur of activity and people moving into and out of Mother’s room.

The “comfort care” medications, Roxanol and Intensol, were administered; hospice nurses came and went according to shifts; a family conference with the hospice chaplain; tears and anguished cries; family members, friends and fellow residents visited; more tears and laughter erupted sporadically as everyone spoke of Mother’s life; dinner was unexpectedly provided by the beloved family members of another resident; hugs – lots of hugs; a young, devoted private duty aide returned twice – on her own time – to continue her dedicated service to a much loved charge; more Roxanol; more Intensol; more tears; more laughter; more tears; more hand holding; silent conversations with Mom; and a hard working nursing home aide, despite completing his shift at 11 pm, who was determined to remain at Mother’s side, caring for her as well as his “second family” until …

Mom received a final dose of Roxanol.

Twenty minutes later, with her daughter, two sons, and a surrogate “family” of friends at her side, Mother was assured by each of us in turn that we would “be alright” – it was “ok” for her to “go.”

She then took one last breath and never relinquished it.

Mother’s long, wonderful life and decade’s long struggle with Parkinson’s disease came to an end with her death just before 4:00 am on Friday, January 14, 2011.

That last breath and her death were not peaceful, at least as far as I was concerned; the reality of both came at me with the force of a tidal wave; I immediately felt myself drowning in the waters of a very deep and painful private sorrow.

In that instant, I was forced to acknowledge that one of two people who had always been integral to my life was now gone – forever.

I will never again hear her laughing through tears as she delivered the punch line of a favorite joke.

I will never again hear her perky morning or afternoon greeting, “Hi, Sweetie!”

I will never again see her beautiful smile.

I will never again receive the gift of her kisses or feel the incredible strength of her tiny hand taking a firm grasp of my own.

I will never again hear her assure me with an, “I love you, Bobby.”

And, I will never again experience the intensity of her eyes locking with mine – as if peering into my soul.

No.

At that moment, her death became all too real; the promised separation could not be undone; her death was absolute.

And just as she was mercifully cut loose from the moorings of a long and blessed life ~ impaired, in the end, by debilitating infirmities ~ a part of me most surely died as well.

But even while no longer whole, I also knew that I would grieve and ultimately recover in a manner best suited for me.

And please forgive me if I ask that no one offer a recipe for grief, complete with certain ingredients and results; I will find my own way given time.

Life has taught me that Death is a mystery and is loathe to provide answers; alternatively, would any certain answer magically render the sting of Mother’s loss and our loneliness less painful?

No.

Unanswerable questions are a part of life.

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To this day, I still am haunted by the eight words spoken nine days earlier to a trusted friend after leaving the nursing home to the abyss of an imposed uncertain return,

“Mother will not be alive when I return.”

Room 802

Whether conscious of it or not, when moving into a neighborhood we invariably become familiar with the rhythm and pace of our neighbor’s lives. I know a few people who would argue that this makes “nosy” people of all of us but, being neither cynical nor jaded, I have an entirely different point of view. I can’t help but believe this is simply a part of our nature; we are hard-wired to seek out the companionship of other people. And just as every family must learn to deal with the antics of a “crazy Uncle,” most newcomers eventually accept all of us as neighbors – foibles and all.

Moving on to a life within a nursing home is no exception.

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Every Wednesday, Honora’s daughter and son-in-law bring a hot meal for her to share with them in the Activity Room at GVM. While caring for Mother these past two years, we have come to eagerly anticipate the ritual of these dinners as it gives everyone the opportunity to catch up with the lives of those we have met and befriended along the way. The conversation, laughter and food that are the mainstay of these reunions, represent a welcomed temporary respite from the often harsh realities of life within the nursing home.

There was something different about the energy flowing from the Activity Room this past Wednesday, however, that didn’t escape the attention of another resident, Dominic. Despite suffering a stroke two years ago which left half of his body as well as his speech greatly impaired, Dominic’s razor-sharp mind seemed to tell him that he might be missing out on some excitement within the room. Never one to let such an opportunity pass, he slowly wheeled himself toward the commotion so as to quiet his growing curiosity.

While not surprised to see Honora’s family eating dinner at one of the many tables, he couldn’t help but notice the many young people milling about the room – some playing pool, others cramped together on a couch, and another two eating alongside their father. As the patriarch of a large and loving family, this scene must have surely resonated with Dominic. When I noticed him inching further into the room, I couldn’t help but wonder if he was hoping to soak up some of the energy offered up by the young people.

With only another moment’s hesitation, however, he motioned me to his side. Pulling me close to him, he then mumbled, using the only patois left to him after the insult of his stroke, the garbled yet obvious question that was foremost on his mind,

“What’s going on?”

“Dominic,” I began, “these are the grandchildren of your neighbor, Aletha.”

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Aletha became a resident at GVM nursing home two years before Mother. Having suffered with vague, sundry complaints of joint pain since her late teens, rheumatoid arthritis didn’t manifest itself fully until she was thirty-six years old, then a wife and mother with three teenagers of her own. During the intervening decades since her formal diagnosis, this cruel disease ravaged nearly every joint in her body. For all my years of practicing medicine, I had personally never encountered a more deforming and debilitating case of rheumatoid arthritis.

In the six years or so immediately preceding her arrival at GVM, the life Aletha had cultivated over many years began to unravel as a result of this merciless disease. Subjected to untold orthopedic surgical procedures as well as various stints undergoing inpatient rehabilitation, Aletha was eventually forced to come to terms with the reality that she would always require professional medical assistance as she carried on with her daily life; this is ultimately how she came to be a resident at GVM.

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My family met Aletha and her husband, Leonard, soon after Mother arrived at the nursing home in July of 2008.

One wouldn’t necessarily be wrong when asserting I am prone to a level of familiarity with relative strangers that many good people simply don’t understand. Depending on my gut instinct when meeting someone, I often skip over introductions and small talk, taking the liberty of speaking to or joking with people as though I have known them over a lifetime. While many seem to understand and even appreciate this personality quirk of mine, others, admittedly, do not.

Aletha most certainly did NOT. Or so I thought.

Despite my best efforts, all initial attempts to charm this tiny woman seemed to fall flat. Try as I might, I simply couldn’t make headway with the doyenne of the 800 hall. I still wince at how effectively she could wither my fragile male ego with her knockout trio of silence, a glare that could melt ice, topped off with an ever-so-slow shake of her head. Like some tyrannical Queen from a book of childhood fairytales, Aletha held court from the perch of her Hoveround throne and might as well have been looking at me in those early days while declaring,

“I do not suffer fools gladly … and you fancy yourself my court jester? Off with your head!”

While clearly losing many of the early battles, I eventually conquered her heart.

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I don’t believe I truly had the opportunity to get to know and care for Aletha until after the death of her husband in the early days of 2009. Whereas many a widow may have elected to simply give up after the death of a beloved spouse, Aletha earned my respect and admiration for how she coped, at least outwardly, with his loss over time. As I became better acquainted with her over many months, I learned to appreciate her many strengths, passions, and resilience while also discovering that she was an extremely loving, amiable, devout, vulnerable as well as a wickedly funny old woman. Aletha was definitely my kind of girl.

Spending time reflecting on many of the elderly residents I have come to know at the nursing home these past two years, I often pondered the incredible physical hardships Aletha endured over more than fifty years at the whim of an indiscriminate and horrific disease. Given her cumulative suffering, she could have easily made a selfish decision long ago to simply live life on her own terms – to think only of her needs and concerns. And who would have blamed her?

Thankfully for her many family members and friends, Aletha didn’t make that choice; I seriously doubt she ever considered it.

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“What’s going on?”

When answering Dominic’s question I hadn't yet realized he was posing a rhetorical question.

Over the past two days he had noticed the change in the flow of traffic within the 800 hall; more and more people were moving into and out of his neighbor’s room. His mind suspected that which was, as yet, unspoken but his heart didn’t want to believe it was true.

Aletha’s life was drawing to a close.

Someone asserted a belief to me this past week that “people go to nursing homes to die.”

I respectfully disagree.

On a practical level, Aletha and Mother entered the nursing home so they might obtain the level of professional assistance they could no longer achieve at home. Simply put, it was an appropriate decision for both of them.

Surely, moving into a nursing home is not simply "the beginning of the end."

I will freely admit, however, that it took me a long time to come to terms with the notion that transitioning Mother into the nursing home might represent yet another beginning.

But as a helpful friend explained to my sister, “Don’t look at this as a negative. Your Mother is simply moving on to yet another phase in her life. She is no more capable of living life on her own terms than you are able to run as fast as you could twenty years ago. It’s a fact of life.”

Over the four years of her life at GVM, Aletha became an adored member of yet another community of people both young and old. On some level, I am confident her family wouldn’t deny that the friendships and support offered within the nursing home could not have been matched had she remained at home. Her involvement within her new “neighborhood” became an invaluable asset both to Aletha and her many friends alike.

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This past Saturday, Aletha’s family asked my brother and me to join them in her already crowded room as they prepared for her death. Standing at the foot of her bed reciting a silent prayer, I suddenly became aware of a low murmur percolating throughout the room. In a few seconds the sound became more pronounced and registered in my mind as the time-honored hymn, “Amazing Grace,” being sung by her entire family. My initial instinct was to leave the room out of respect for their privacy, but I was also struck by the honor of their invitation to join them – as family – to share in their sacred moment. Hymn followed hymn, each sung more boldly than the last, culminating with “In The Garden” bravely offered by her grandson, Joshua.

I stood in awe watching as family members and friends cried tears of both sorrow and joy for the Christian promise of eternal life awaiting their beloved, Aletha.

With amazing grace and abundant faith, they willingly offered her soul up to God.

The experience was profound.

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Twenty-four hours later as the sun set on another beautiful, crisp Fall day, I was again privileged to stand alongside two of Aletha's grandsons as she relinquished her final breath.

Shepherded by her loving family, a team of compassionate hospice nurses, and a host of caring friends and neighbors made possible by her life lived within a nursing home over four years, Aletha’s long journey came to a fitting end exactly as she might have envisioned it.

In Room 802 – the last address she would ever call home.

Capturing Life

It's well documented that many Native American’s wanted nothing to do with the white man, Edward Curtis, who would eventually became famous for his stunning collection of photographs immortalizing Indian tribes beginning during the latter years of the nineteenth century.

Generations would speak of long dead relatives who were truly afraid of what his camera might bring to them; they feared his “magical boxes” might literally capture a part of them, if not steal their souls altogether. As a result, many Indians wanted no part of a folly which might prevent them from travelling peacefully on to the “other world” by holding their souls captive on image-laden panes of glass or cellulose.

Time has an uncanny way of changing views about most anything.

Walk into any home of a descendant of these noble tribesmen, and I am confident one would see numerous images of family members ~ living and dead ~ covering walls or desktops. And I would venture a certain bet that most also carry a cell phone equipped with the necessary technology to instantly transmit both still and video images far and wide.

As her life ebbs to a close, my family has set out to unearth as many beloved ~ as well as previously unseen ~ photographs of Mother accumulated over a lifetime. And, as I sit here reflecting over a group of these priceless images, I can’t help but think of the fears expressed by the ancients of the Wild West, and I begin to understand.

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I don’t believe I had ever seen this picture until last year. To my knowledge, this is the earliest picture on record of Mother, sitting alongside her beloved brother, Jim.

She could have been no more than a toddler; she surely had not a care in the world. While the “Rules of Behavior” established by her parents might have made a slight dent in her public persona, for the most part, she seems to have been totally unrestrained with the excitement and joy of living for the moment, spending time with her family and a curious man with lights, a box, and a silly toy.

“This isn’t something we do every day!"

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This picture of Mother in early childhood speaks volumes. Born at the onset of the depression, Mother was raised during those difficult times that demanded much of everyone, including children. As with most children, I doubt she was keenly aware of the serious challenges facing her family and nation that may have affected her daily existence.

There is a seriousness about her in this photograph.

At this time, parents still demanded a great deal from their children when it came to deportment; rest assured Mother was never allowed to run lose screaming in a public setting; failing that, I can only imagine the serious consequences that would have been had.

“Children were meant to be seen and not heard.”

My guess is that the seriousness of this picture, however, has more to do with her sewing.

Mother’s passion for toiling with her hands has never known any bounds; her fascination and love of sewing during childhood would eventually expand to include knitting, gardening as introduced to her by her grandfather, and, in later years, cooking.

While she steadfastly refused to ever acknowledge praise, she was very skilled at all of them.

It is little wonder why I was once (correctly) accused of hiding Mother’s apple pie; to my mind, it was inconceivable to me that any of my more pedestrian siblings might come close to truly appreciating the God-given wonder that was her Apple Pie. Purely out of reverence, I did what I had to do.

The many gifts, wrought of her own hands, would bring great joy to Mother ~ and many others ~ for decades to come.

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In today’s vernacular, Mom would be labeled a “Tween” in this photo. Taken in advance of her twelfth birthday, Mother was clearly coming into her own.

At the time of this photo, the Great Depression was soon to be eclipsed and later vanquished when America was finally forced out of self-imposed isolation into the worldwide conflagration of WWII.

Despite the continued challenges at home and abroad, I see a young girl/woman who was full of optimism, daring to envision a future with limitless potential.

Her life was surely centered on her family but now included friendships, school, tepid attempts at independence, and ... dare I say ... boys?

Knowing my Mother, I would have bet, “Not.”

Mom has never suffered the foolish antics of boys well; I should know.

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By the time this picture was taken, we are left to assume that many young men didn’t bother asking if Mom was indeed interested; one can only imagine the extent to which many a suitor might have gone while attempting to win her attention.

This picture, presumably taken while in college, eventually represents a true find.

My sister was so excited when describing it to me over the phone one evening that I was confident she surely must have exaggerated its potential.

But, perhaps owing to my own personal bias, my sister had been absolutely correct.

Our future Mother was a knockout.

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A gaggle of four elderly women recently stopped by Mother’s room while I was visiting. They had all played bridge together for years and, merely by coincidence, learned that Mother was now living in the same nursing home where one of the four was recovering from a hip replacement.

On seeing Mother, I could tell that each of them was immediately taken aback. While no one ever fails to still speak of Mom’s natural beauty and flawless skin, the woman sleeping in that bed was clearly not the vibrant person they had come to know ~ or, perhaps, even wanted to see.

I quickly grabbed a framed picture of Mother from ten years ago and handed it to them. To my amazement, they all became extremely animated when they exclaimed, “This is our Dorothy. Oh, she is so beautiful ... and such a bridge player you have never seen!”

I was ultimately struck how their hoped-for reunion was accomplished only after seeing the woman in the picture from a decade ago; the woman named “Dorothy” asleep in that bed seemed merely to be an abstraction.

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While examining a good many pictures today, my thoughts suddenly turned to the stories of the Native Americans who were so afraid of the potential for a camera to steal spirits.

But, isn't "capturing" the spirit of a person, at least figuratively, exactly what photographs were intended to do?

To remind all of us of the joy and excitement captured forever in a photograph of our future Mothers as toddlers?

To remind all of us of the first glimpse of steely determination captured forever in a photograph of our future Mothers as they learned the lessons of childhood?

To remind all of us of the promising signs of wonderment and awe captured forever in a photograph of our future Mothers as they began taking their first tentative steps into adulthood?

To remind all of us of the youth, beauty, and vigor captured forever in the photographs of these wonderful women who would soon complete the cycle of life, becoming our mothers?

Just as Mother’s friends would have preferred to be reunited with the “Dorothy” they had come to know and love over many years, all of her children would welcome any opportunity to take a magical step back in time. But, such a dream will surely never come to pass.

My brother has busied himself over the last year or two with his digital SLR camera taking pictures whenever he visits with Mother. I will admit that when I hear the automatic succession of clicks produced by the camera, an odd feeling often settles over me.

I become a bit uncomfortable, I believe, because I am not sure if Mom and he are both aware of what exactly he is doing. Mom isn’t blind to her condition, and then, again, neither is my brother. But, I just can’t help but wonder if both of them understand his vain attempt to “capture” as many of the waning moments of her life that are quickly passing by.

It almost seems to be an act of desperation.

But, to what end?

Unlike the fears expressed by the Native Americans when Edward Curtis appeared with his camera, my brother clearly holds neither the power nor interest in preventing her spirit from moving on to the “other world.”

He does, however, intend to take every opportunity to capture as much of the beauty, love, spirit, joy and determination she continues, in her own way, to exhibit most every day.

730 Days

"But what minutes! Count them by sensation, and not by calendars, and each moment is a day." (Benjamin Disraeli)

Meaning no disrespect to Mr. Disraeli, my calendar forces me to remember that two years have passed since Mother walked through the doors of the nursing home. Is it possible? 730 days. They came and went without permission; time "truly seems to be the lone thief unchecked by any law." (Napolean I)

Memories come to me, not as streaming videos, but in the form of frozen images ~ like photographs suspended in time. We have all been fortunate to spend considerable time these past two years accumulating cherished images of Mom that may serve to carry us through the difficult days ahead.

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Time alone with Mother is often hard to come by. Invariably, other family members, friends and nursing staff shuffle in and out of her room making demands, small and large, of her time. Every so often the stars seem to align, however, placing each of us in that proverbial “right place and time,” granting an opportunity to be alone with Mom while she is alert and conversant.

One night will probably always stand out for me.

My family had accepted the invitation to eat dinner with our cousins; while I enjoy a good “Taco Tuesday” as much as the next guy, for some inexplicable reason I chose to stay behind with Mom. I will always be happy I did.

After we finished dinner in her room, Mom began a familiar slow boil towards agitation. She wanted her family at her side and, if that didn’t materialize soon, she was sure to voice a well-worn demand for me to immediately take her home. Ultimately, I convinced her not to consider such a move until her other children returned from dinner. In exchange for her cooperation, Mom made but two demands: (1.) Ice Cream, and (2.) Michael Buble’s “new music” had to go.

The iPod was then set to play Barber’s, “Adagio for Strings.”

In an instant, her entire mood changed.

Gone was any sign of agitation or assured talk of walking the hallways to the front door and beyond. Instead, she seemed to settle into the comfort of the bed and began quietly working her tiny hands through processes she had repeated a thousand times over in her former life; without recipe, visible spices or pans, Mom was again cooking dinner for her children who would soon be coming home.

Her hands are much smaller than I remember; while this could be a failure of my memory it is more than likely a physical wasting wrought by time and disease. Regardless, there remains a beauty, strength and fluidity in her movements. As she continued to reach effortlessly into cabinets from some distant past, I am confident she knew exactly where everything was supposed to be. This was ballet.

She was also in the mood to talk.

I am not altogether sure Mom’s eyesight isn’t failing. But she sees plenty. Even if only viewing the memories of her mind’s eye, Mom seems to create threads of conversation based on what she sees and these images apparently drive her thoughts. One need also understand that moments of cogent thought come in waves for Mom, most often mingled with random meanderings. Some days are certainly better than others; these two hours of conversation alone with Mom reduced me to tears more than once.

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She spoke of the many people who are coming her way. She was concerned she might not be able to, “feed and clothe all of them.” When I asked if she knew why they are coming, she replied with a simple, “Yes.”

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As she continued cooking, she noticed that in the midst of the group she could make out the image of her beloved father and, presumably, a dog named “Zippy.” When I asked what her father was doing, she told me that, “he is moving slowly.” While she was genuinely excited about seeing her “Daddy,” there also seemed to be some reticence in her reply.

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When she eventually spoke of my sister, Mom’s face was suddenly relieved of all tension as she smiled a well known smile. Turning her head to me, she then locked her eyes and soul with mine for the first time that evening while stating unequivocally, “I never knew anything about love until my girl came into my life.” “My Jeannie. My beautiful little girl.”

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Thoughts eventually turned again to her father. Only this time she decided to write him a letter; she insisted I find some paper and a pen. Mom hadn’t written her famous daily lists in more than a year, but she took the pad and pen and held them both in her familiar left-handed manner developed over a lifetime. In the end, only the word “Dad” was legible among random threads of scribble, but even that single word resembled nothing of her familiar script. When I asked what she had written, she said, “Daddy. Walk slowly ... I’m not ready.”

~~~~~~~~~~

“Will you set me free?” She said it over and over again. Cupping her small right hand to my face, she again engaged my eyes and implored me to set her free. I don’t know what she meant. She has so long begged to go home but home may now hold a very different place in her mind.

~~~~~~~~~~

“I want all of my boys to lift me and carry me home.”

~~~~~~~~~~

My family eventually returned to the nursing home with the ice cream that had been part of our original bargain. As they each settled in alongside Mother’s bed to eat their sundaes, there was nothing I could do but leave the room. The emotions of the evening had run strong; I was spent.

The last thing she had told me before they entered the room took me to an entirely different place:

“When Daddy comes for me, I want to walk through a field of petunias until I reach the edge. And when we get there, I want to return to the center of the field.”

“Why?” I asked.

She looked at me, again, before answering,

“I will be home.”

Last Dance

I looked at Paul as he went through the motions of the morning and couldn't help wonder what he was thinking. There is no way I can yet understand how he felt.

~~~~~~~~~~

Imagine...

... a progressive disease has robbed you of the very essence of your being. Indeed, every semblance of the life you now enjoy ~ not to mention, the dreams envisioned for your "golden years" ~ have been quashed. Instead of trips planned to visit family and friends, foreign principalities or even a local grocery store, you one day find yourself in a strange, if not, foreboding place. Adding one last insult to injury, you are confined to a wheelchair, robbed of what may well have been the last vestige of any control over your life.

Where are you?

The place into which you have landed is foreign, yet somehow familiar. There is some vague similarity to the sights, smells and pace of hospitals previously visited but there also remains something that is simply ... different.

You soon realize the place is devoid of the normal, comfortable sounds of home ~ no children laughing and squealing while at play, no dogs barking, no water boiling over a stove, no televised football, no music, and not even the curiously familiar sounds of a furnace or dishwasher at work.

Yet, there is a cacophony that percolates through every corridor of the place; it also seems it will never stop.

Call lights blink and "buzz," aides noisily transport metal carts heavy with the smell of food along uncarpeted halls; invisible, unanswerable telephones ring; televisions blare uncontrollably; and, sundry voices ~ not family ~ cry for attention.

"No," you are certain, "this most definitely doesn't feel like home."

Given enough time, you will awaken to a dawning realization the life you once cherished is past.

And, true to the unsettling promise of Thomas Wolf, you eventually understand, "you can't go home again."

~~~~~~~~~~

Mother made this same unhappy transition to a new life within a nursing home two years ago, July 7. Oddly, the intervening years since that somber summer day passed with the "blink of an eye" while also managing to feel like an eternity. I recently came across photographs taken when she first arrived, and found myself shocked by the change that has been visited upon Mother since arriving at GVM. The woman who spends most of her days confined to a bed in Room 807 bears little resemblance to our Mother who, some seven hundred days ago, walked into the nursing home on her own steam. Now confined to a wheel chair, Mother will surely never walk ~ or dance ~ again.

~~~~~~~~~~

One December weekend, I made a decision to bring my portable Bose stereo system to the nursing home. My initial intent was to provide an alternative diversion for Mother who spends most days bored within the isolation of her room. At noon, as a private duty aide arrived to sit with Mom for a few hours, I packed up my "music" and headed for the front door. Having befriended many residents over time, however, I stopped by the dining hall to greet a few friends and fetch coffee. I was almost immediately struck by the din within the dining room; hearing only the sounds of low murmurs as well as the metallic clank of silverware on china, the dining room ~ in the midst of a holiday season ~ was nothing short of oppressive. Not needing permission, I unpacked the Bose, started my iPod and activated a playlist of holiday music.

The effect was nearly instantaneous.

The pall over the room lifted. Most smiled. Many began moving their feet uncontrollably. Some laughed as others cried. And, while a few residents eventually began to sing, others raised their hands overhead in rhythm to the music...

... and one...

Lena, at 95, had been living in the nursing home for many years. Most days it was hard to get even a single syllable response out of her; while she was most always attentive to welcoming "hellos," she rarely offered much in return. Her beloved son, Paul, who had been attending to her daily concerns for years, was understandably one of the few people with whom she would routinely interact but now those moments were becoming rarer with time.

Until that December afternoon...

Lena clearly discovered a wellspring of renewed life within the music that afternoon. This seems to be what happens with most people when exposed to music they truly love. If a person happens onto the classical music listened to by the parents of their youth, the popular music of a bygone era, or even a particularly sentimental favorite holiday song ~ if it was embraced by a person long ago, she will most certainly welcome it with renewed fervor on hearing it again.

Listening to the music that day, Lena's entire countenance suddenly changed. She sat up in her chair, lifted her head, smiled beautifully at Paul and then ~ unexpectedly ~ held out a tiny hand to him. Paul instinctively understood ~ it was not simply a gesture but a request.

Taking a firm hold of Lena's weakened hands, Paul gingerly lifted his frail Mother from the cuirass of her wheelchair,

and then ... they danced.

Over the next few minutes, the entire dining hall was transfixed by what they saw; other family members, residents, and staff watched, applauded and cheered as Paul took the opportunity to share a December dance with his Mother ~ temporarily awakened from a slumber by the effects of the God given wonder that is music.

~~~~~~~~~~

Yesterday, at the base of a gently sloping hillside, Lena was laid to rest, her grave adorned with dozens of pink and white roses.

I looked at Paul as he went through the motions of the morning and couldn’t help wonder what he was thinking. There is no way I can yet understand how he felt.

At the conclusion of the service, Paul, eyes brimming with tears, came to thank me for attending the commemoration of Lena’s life.

And as he walked away, Paul suddenly stopped, turned again to me, and smiled a knowing smile. Since that December afternoon so long ago, he has never failed to remind me of the “last dance” shared with his Mother. It was a moment none present will soon forget ~ nor was it a dance family members will ever have an opportunity to share with our own Mother.

Lena and Paul danced for all of us that day.

I understood the gratitude behind the smile on his face yesterday; he need not have spoken another word.

Room 806

It is an iconic memory from my youth.

Walking outside, I was met by a beautifully bright, cool Spring morning, the air cleansed with the freshness of an overnight rain. I found Mother exactly as I had expected; kneeling on the ground, quietly working one of her many gardens.

As I began to speak, Mother looked up and, putting a finger to her mouth, silently encouraged me to take time to listen to a dove as it cooed.

After a moment, Mother smiled and, as if sharing a confidence, revealed she liked to mark her calendar every year with the date she first heard the call of a dove.

By a turn of good fortune, I had come upon Mother at the exact moment she celebrated an annual, sacred moment; this is when I learned of the special communion she shared with her “crocus birds” ~ the doves, her birds of early Spring.

~ ~ ~ ~ ~ ~ ~

When the gentle cooing of a mourning dove from a bird clock hanging on the wall in Room 806 sounded for the second time last Friday, another child was also fortunate to be at her mother’s side ~ this time, as the woman took a final breath.

“If only I had wings like a dove that I might fly away and find rest.” ~ Psalm 55:6

Being a devoutly religious woman, I can’t help believe Mabel would have found significance in the call of a mourning dove at the very moment of her death ~ that such symbolism had been placed in her family’s path to convey a message upon which they could focus in the hours, days and weeks to come.

Mabel would probably want them to look upon the dove as a potent reminder of the importance of peace in their lives. She would want them to share in her own belief that peace, as symbolized by the dove, will not only work to quiet their troubled minds but will also allow them to find renewal in the silence. And through the stillness inherent to silence, she would want them to fully appreciate the simple blessing and importance of a life well-lived.

It should also be noted that at the moment of Mabel’s death, after the dove had finished its mournful lament, the bird clock stopped working altogether.

The significance seems profound:

Just as I had been fortunate to share a special moment with Mother and her “crocus birds” many years ago at the advent of Spring, Mabel’s daughter was truly blessed to be at her Mother’s side as the dove cooed, witness to the most sacred moment of Mabel’s life as she moved on to another existence that will have her knowing nothing of the boundaries of time.

Stop all the clocks, cut off the telephone,
Prevent the dog from barking with a juicy bone,
Silence the pianos and with muffled drum
Bring out the coffin, let the mourners come.

Let aeroplanes circle moaning overhead
Scribbling on the sky the message ‘She is dead.’
Put crepe bows round the white necks of public doves,
Let the traffic policemen wear black cotton gloves.

She was our North, our South, our East and West,
Our working week and Sunday rest,
Our noon, our midnight, our talk, our song;
We thought that love could last forever; we were wrong.

The stars are not wanted now, put out every one,
Pack up the moon and dismantle the sun,
Pour away the ocean and sweep up the woods;
For nothing now can ever come to any good.

From W.H. Auden’s “Funeral Blues”

JEM and Mabel; Christmas 2008 GVM

Popcorn Sky

“How are you doing, Mom?”

Slowly turning her head, she stared vacantly in my direction as though seeing me for the first time; confident in the belief that no son of hers would have ever asked such an inane question, she, nonetheless, offered an extremely sane reply,

“I am going crazy! That’s what I am doing! All I do – ALL day – is lie here staring at this ridiculous ‘popcorn sky!’”

2008

Arriving at the nursing home in the summer of 2008, some were convinced Mom wouldn’t live to celebrate Thanksgiving – let alone Christmas. The statistics were certainly not in her favor; number crunchers in lonely cubicles had coldly calculated a life expectancy of between “six to nine months” for nursing home residents in the final stages of neuromuscular disorders.

By October, hospitalized for the third time in a month, two neurologists spent perhaps fifteen minutes – collectively – making separate evaluations before brashly pronouncing she was in the final stage of her Parkinson’s disease and would not live to see another Spring. (“Sorry, thank you, here’s my bill, goodbye.”)

As if slapped, we had been assured – in unambiguous terms – Mother’s clock was rapidly winding down.

On her discharge back to the nursing home, no time was wasted; Hospice was initiated immediately.

I fast became a living, breathing contradiction: I absolutely wanted Mother’s suffering to come to an end, but would have gladly admitted I didn’t care at all for the prospect of losing her in the bargain. Given time, however, I drank the “kool-aid” becoming convinced that once the chain of events with Hospice was set in motion, Mother would be transported on a conveyor belt toward certain demise.

Our death watch began.

Halloween gave way to November. Days slowly became weeks and, miraculously, Mom seemed to thrive as we eventually managed to celebrate the holiday season that culminated with the arrival of a New Year. Mom was fighting and I allowed myself to hope.

January 2009, however, dealt Mother a severe blow.

A particularly vicious bug made the rounds at the nursing home and didn’t stop at Mother’s door; bedridden for nearly three months, she valiantly fought a respiratory infection that had succeeded in taking the lives of more than a few residents.

By mid-February, a hospice nurse abruptly declared Mother would live no more than two weeks; touting a “95%” accuracy with similar pronouncements in the past, she made a request that all medications be halted and palliative care initiated.

This “nurse” and others had apparently failed to factor Mother’s dogged determination and resolve into their equations.

Thankfully, the grossly inappropriate and premature directives were not carried out by her physician of record; more than a year later, Mother is still very much alive.

But, she is certainly not the same.

Weeks confined to bed recovering from the infection had left her extremely debilitated. Her right foot had become permanently plantar flexed and was beyond the scope of physical therapy. So, in the span of three months, her life was dramatically transformed; no longer able to run the halls of the nursing home trying to find her way “home,” Mother had become effectively bedridden.

October 2009

“I am going crazy! That’s what I am doing! All I do – ALL day – is lie here staring at this ridiculous ‘popcorn sky!’”

Looking up, I immediately understood. Every minute of every wakeful hour of every day confined to that damned bed, Mom had no choice but to stare at the blank canvas of her textured ceiling that had – over a period of several months – become her entire world view. Who wouldn’t go stark raving mad?!

With a wheelchair now her only means of mobility, we took Mother outside later that morning hoping she could enjoy the beautiful fall day. The leaves had reached the peak of color with their resplendent shades of red, orange and yellow; it was the season at its visual best.

With Mom’s frustrating admission still fresh in my mind, it suddenly dawned on me that Nature had provided a possible solution. Gathering up a few handfuls of the brightest, most colorful leaves, I returned to her room. Standing on her bed, I then taped an assortment of the leaves to her barren ceiling, hoping beyond hope the small change would somehow help to break up the monotony of her days.

It worked.

While the change in her affect once she noticed the leaves on the ceiling was not dramatic, at a minimum, she certainly became engaged with “her leaves.” She might speak one moment of the need to “rake the leaves,” then immediately order us to “leave them alone!” She described them in detail to aides, and even counted them for me on occasion.

It amazed and pleased me that a ridiculously simple idea could have affected a difference for Mother as she spent hours alone in silent contemplation of the leaves; most poignant for me, was when she would lie completely still in her bed, smiling and staring endlessly up at her colorful Popcorn Sky.

Emboldened by this minor success in the Fall, December ushered in the anticipation of yet another Christmas season and an even greater transformation of her ceiling for the holidays. A nursing student, Tracy, and I spent a Saturday morning listening to holiday music while hanging a colorful assortment of ornaments throughout Mom’s field of vision; a woolen Santa and Snowman, mittens, snowflakes, and shiny, colorful balls were suspended at various levels about her bed.

It was pure fantasy and she loved it.

April 2010

Winter finally seems to be giving way to a much anticipated Spring.

In the coming days, the snowflakes and snowman will come down from that ceiling to be replaced by suspended mobiles of pictures from her own gardens as well as much loved Sunflowers.

While Mother had to long ago give up working in the gardens that represented her lifelong passion for toiling the good earth, we are determined to force a Spring of our choosing – once again bringing her beloved flowers within arms reach, suspended from the Popcorn Sky.

Postscript: The Girls From Table 5

The Girls From Table 5

I hated the table from the start.

Any other dining room arrangement would have been more appropriate to satisfy Mother’s needs as well as my own. She had been assigned to the smallest of tables in a corner of the dining room seemingly away from any semblance of friendly interaction and conversation. I immediately spied another table of women who genuinely appeared to enjoy each other’s company and quickly recommended the change. But it was not to be.

Mom was stuck in her place at the proverbial children’s table with a couple of cantankerous looking old women. I was not hopeful.

Thankfully, time and experience teaches most of us that initial impressions rarely ring true; the girls from Table 5 would eventually win our hearts.

There was Lola, the pill-hoarding, wardrobe/manners Nazi, whose idea of discretion was to hold a cupped hand to her mouth while offering unsolicited and not-so-quiet pronouncements of guilt at any wardrobe offense or lapse in decorum. She was clearly an old curmudgeon poorly disguised as a sweet old lady.

Then there was Murel – NOT Muriel. My first thought was that she was the picture perfect embodiment of what advancing age would have done to the innocence of Cindy Lou Who from the Grinch. While Seuss’ Cindy may have preferred Who Ham or Roast Beast, Murel’s favorite meal would surely have consisted of a tub of margarine.

Today, I write of Ms. Delia, who came to GVM in October of 2008 and subsequently joined the troika – rounding out a foursome at Table 5.

I freely admit to immediately falling for this feisty, breathlessly frog-throated woman. She was the perfect counter balance to Mother’s shyness among strangers, Murel’s sparkling lunacy, and Lola’s demand for order in an otherwise chaotic environment.

A product of the Depression, Delia, nonetheless, doggedly pursued a college degree in education from Wayne State University going on to teach “everything” within the walls of a Nebraskan one-room school house. In the years that followed, her marriage, coupled with the demands of her husband's ever-changing career, had the family move through various incarnations in Nebraska, Texas, Louisiana, and, finally, Roosterville.

While they never knowingly met, this also happened to be the same untouched farmland hamlet into which my Mother and Stepfather eventually settled.

It is a small world.

When Delia arrived at GVM, she was full of energy and took every opportunity to engage in vibrant conversation and a good game of Skip Bo with her daughter and a friend. She also didn’t shy from handing me a good measure of well-deserved grief on occasion.

I am not personally inclined to treat these elderly residents with kid gloves; I feel that to do otherwise is to deprive them of the intellectual respect they are due. With time and the development of trust, I zeroed in on some of the buttons which pushed each of the ladies in sundry pleasant directions; they genuinely seemed to revel in the good natured (and well intended) give and take.

Often the prodding would have Lola loudly labeling me a “smartass” all the while assuring me that she loves me. And ever incandescent Murel certainly could do no wrong blowing kisses my way, supporting a fragile male ego by further asserting that I am a “very handsome man.”

And, there was Delia. She rarely dropped a beat, almost never missing the opportunity to give as “good as she got.”

Over the past year, we have all been fortunate to share in her joy as a beloved granddaughter married and subsequently wasted very little time providing Delia with her second great-grandchild, Kane. While I was never certain if the couple had moved to Wyoming, South Dakota, or Kansas, the specifics really didn’t matter. She beamed with pride at the telling of every twist and turn.

She clearly loved her family. I distinctly remember the moment she proudly uttered the declaration that her family “was the most important thing I have ever done.”

Delia’s family and friends began the process of mourning today; she passed away late last night following a devastating stroke.

While extremely sad, I am also compelled to smile and inwardly laugh at the thought of Delia and the great joy and laughter she brought to the lives of those around her.

Over the past year, a persistent source of consternation for Delia came at the hands of a less than agreeable roommate at GVM. Her daughter assured me that Delia never had so difficult a relationship with another person in her life. Delia desperately wanted nothing more than for her “problem” to disappear.

As it turns out, Delia finally got her wish.

Just a few days ago, the roommate was moved to another room after breaking her hip and leg.

The immediate question that came to my mind – and out of my mouth – was, “Did Delia do it?”

Absent Delia’s death, Table 5 was already no longer what it used to be. Wheelchair bound, Mom no longer takes meals in the dining room instead preferring to eat early within her room; Murel has become a veritable vagabond happily flaunting the “rules,” eating margarine while making the rounds at other tables; and, well, Lola remains – the single hold out who continues to fight the good fight.

I didn’t know these three remarkable women before they came to the nursing home; there is a part of me that does like to imagine the full width and breadth of the lives each of them enjoyed before time and circumstances brought them together at that smallest of tables.

There was no getting around it. I absolutely never wanted to like anything about the nursing home, that stupid table, and the old women who occupied space at Mother’s side during meals. But each of these women eventually managed to worm their way into our collective hearts without really trying. We are all the better for it. I personally never would have predicted that such an unruly admixture of personalities and experiences could have melded into such a perfect union of souls.

Whomever they were, or wherever life took these women prior to their arrival at the nursing home was never a part of our shared experience. With time, all of us simply came to love the women who were living in the here and now – the girls from Table 5. Without reservation, the only place to be!

In the next few days or even weeks, family and friends will gather at Stroud’s in a celebration of your life, Delia; they will pass the chicken, mashed potatoes, green beans – and, yes, even the bottle – around the only table that truly mattered in your life. The table of your making.

It is said that a person is never completely gone so long as one person remembers her name.

Your family and friends will not allow Kane to forget you, Delia.

I will cherish the memories of my friend from Table 5.

January 1941

Doubtless to the eventuality of being dragged into the world wide conflagration, in January of 1941, FDR delivered his famous “Four Freedoms” speech to Congress and the nation; his words would become a clarion call to arms.

Two years later, Norman Rockwell immortalized those four enumerated freedoms ~ Freedom of Speech, Freedom of Worship, Freedom of Want, and Freedom from Fear ~ by crafting posters to illustrate the concepts. After the works were summarily rejected by the War Department (as a donation), Rockwell went on to offer the illustrations to the Saturday Evening Post. When first published in February of 1943, the popular response was overwhelming resulting in thousands upon thousands of poster prints ordered up by everyday people.

The images were instantly iconic.

Freedom from Want.

This poster never fails to capture my interest; it tugs at my emotions. When contemplating the scene, I am at once a guest among a family of strangers, intruding as they gratefully celebrate another Thanksgiving. Yet, even in the midst of these strangers, I can’t help but feel a familial connection, and am instantly transported to another time, place and celebration of my own choosing. This is the essence of the sway this illustration holds over me; it plays on my nostalgia for the days, now past, when an ideal gathering of my family was fully realizable.

For as long as I can remember, Thanksgiving has been spent visiting Mother. This year was no exception. Time and circumstances, however, have changed everything.

My first reaction Thursday when I arrived at Mother’s nursing home was, “Who are all these people?”

Spending time with someone in a nursing home, you gradually become familiar with your surroundings. One aspect of this comes with the eventual recognition of many of those family members who frequently visit loved ones. Over the course of this past four day weekend, however, GVM was replete with people I had absolutely never seen before; seeing them for the first time, I couldn’t help but reflect on the individuals whom my father once derisively referred to as the “ETC’s” of Churchgoers ~ those who only attend services at Easter, Thanksgiving, and Christmas.

I am not passing judgment. I have spent enough time visiting Mother at the nursing home that I have now also come to know and even care for many of her fellow residents. To see so many of the elderly spend days, weeks, and months with nary a friend or relative stopping for even short visits is enough to tear at the most callous of hearts. From my perspective, it is a form of neglect I will never comprehend.

But these folks who were swarming about the nursing home this past weekend, unfamiliar to me or not, had at least made the effort to fulfill a Thanksgiving wish. It was very good to see.

There is a fairly large activity room immediately adjacent to the private residence wing of Mother’s nursing home; there is generally very little interest in it most days. As a result, my family makes great use of the room mainly as a way of breaking the monotony of Mother’s days given that she is effectively bedridden. During the holidays, however, other families sign up to reserve large blocks of time for the room; on these occasions, I will jokingly admit to an ever-so-slight tinge of resentment borne out of a squatter’s sense of entitlement.

The family of one resident who reserved the room this past weekend must have numbered twenty or more. Every generation from infant to great-grandmother was well represented. Chaos was abundant as one might well imagine.

I couldn’t keep my eyes off of the great-grandmother, a fellow resident at GVM, sitting quietly in the midst of all this organized confusion – smiling and happily soaking it all in. She was as much a stranger to me as the Mother in the poster, but just as I am able to immerse myself in the artwork, I instantly understood this grand lady knew exactly how our Mother had always felt when the family was together for Thanksgiving.

Imagine two people living quietly on acres of bucolic terraced gardens, ponds, meadows and woodlands complete with coyotes, deer, and wild turkeys. This was the scene on any Tuesday leading up to the arrival of family before Thanksgiving; twenty-four short hours later, however, several planes, and automobiles always brought new meaning to their understanding of the word “wildlife.”

My family is not shy, for the lack of a better word. We are also – most definitely – not quiet (except for me). We laugh and talk a lot, and since someone invariably feels he/she isn’t being heard, the volume eventually works toward a cacophonous crescendo that can become deafening – even, maddening. It’s family.

Watching the great-grandmother in the activity room, I was immediately taken back to near picture perfect mental images of Mother during our Thanksgiving conversations. She was never interested in being in the thick of these bull sessions or the center of attention. No, Mother always took up an unassuming position at the perimeter of these confabs, sitting quietly, taking in all the noise and general craziness.

It wasn’t until I reviewed some old video from a family gathering several years ago that I first took notice of something curious which had somehow never registered with me before. Seated at a chair in a corner of her formal dining room, Mom was again listening intently to the mayhem surrounding her Thanksgiving table. No matter what jokes were being told or political editorials made, there was Mom – sitting quietly, smiling a smile that spoke volumes.

Her smile was beautiful in its simplicity; Mom was at home with her children and grandchildren. Nothing was wrong with the world.

Our Thanksgiving at the nursing home was a subdued affair this year. The four of us took our homemade meal in her room where there was very little conversation, the only real noise coming from a flat-screen football game.

While I was very happy to have the opportunity to share another Thanksgiving with Mother, I couldn’t help wonder if she might have preferred trading places with the great-grandmother down the hall.

I was also left reflecting on the poster; if given the opportunity, to what nostalgic time, place and celebration would the image transport her?

Whether it was down the hall in the activity room or home, with strangers or family, so long as there were people surrounding a table enjoying each other’s company, free from want, I believe Mother would have simply sat awash in the chaos and smiled.

She Sleeps

I recently watched the older, better version of the film, "Yours Mine and Ours," starring Lucille Ball and Henry Fonda as widow(er)s who met, fell in love ~ only later discovering they shared 18 children between them.

In this movie, as often occurs in real life, love trumped reason with the two eventually marrying, thus creating a setup for untold mayhem as they melded their menageries.

After settling their 18 tax-deductions into bed, the two naively prepared to enjoy the first night together as husband and wife. The anticipation was short-lived, however, when three or four of the youngest burst through the bedroom door announcing their intention to sleep with the newlyweds out of fear of new surroundings as well as a raging storm. Life would never be the same.

The next morning I awoke at 3:50 AM. I hadn't received a page ~ I wasn't even on call. Wide-eyed, I lay in bed staring at the ceiling thinking about the crazy movie as well as lamenting another lost opportunity to "catch up" on my sleep. Suddenly an odd, random thought crossed my mind:

Until the past year or so, I had never seen Mother sleep.

Why the thought captured my imagination I will never know but it struck me in such a way that any return to sleep lost out to a chair and computer keyboard.

I would assume many would argue my family was a bit provincial. While we were certainly allowed in their bedroom during the day, I can think of no circumstance which would have warranted an intrusion into the sanctity of the room at night. I can add with absolute certainty ~ storm or no storm ~ none of us ever sought sanctuary in the safety of their bed; it simply never happened.

For myself, I find this business of jumping onto the beds of family and friends to be perfectly natural; I always feel a bit closer to others after these early morning, rumpled hair, blurry-eyed conversations ~ as if I have taken yet another step toward premium membership to a club. But for all the enjoyment of discussing politics or planning the day, I will admit to a sub-rosa "pull" that would have me get up and leave the room. Somewhere in the dark recesses of my dusty brain, the distant admonishment not to disturb the sanctity of a bedroom survives.

Following what I had always presumed was the natural order in everyone's life, Mother was up and dressed well before any of her children. Once we were all eventually enrolled in school, there was the daily process of making sure each was appropriately attired (siblings claim I once somehow managed to wear pajamas to school) followed by a hearty breakfast ~ that "most important meal of the day." After finishing, each of us was bustled out the door, packed lunch in hand, to then make our way to school ~ times being different, everyone walked.

If Mother then took a much needed nap, I never knew it.

Mother operated in high gear; when her health allowed, she was never deterred by any person or for any reason. She was the living embodiment of the proverbial Energizer Bunny.

When she wasn't shopping for groceries, making dinner, baking desserts, or cleaning she somehow managed to find time to garden, sew, knit, take the occasional art class, play bridge, or raise a never-ending lineage of stray dogs, cats ~ even fowl.

It was only after our stepfather retired from corporate life that we began to see the two of them slow down a bit; the first small step was in the form of short naps taken in the afternoons. I can personally sleep anywhere and at any time ~ medical school and residency has a way of conferring this ability. For the life of me, however, I never saw Mom take a nap on a chair or her favorite couch; she reserved sleep for the privacy of her bedroom.

Specialists have long assumed people need more sleep as they age; this is what I assume my grandfather referred to when lamenting that "youth is wasted on the young." The notion that sleep starts to deteriorate in middle age and steadily erodes with advancing age seemed so obvious that few challenged the prevailing wisdom.

Researchers now feel, however, that sleep patterns do NOT change much from the age of 60 or so; the studies seem to indicate poor sleep is not due to aging but, rather, results from illnesses and the medications used to treat them.

There also seems to be a recognized process whereby poor sleep feeds back to cause a further reduction of health. At least as regards pain, a common factor in disrupted sleep, a restless night can potentiate pain the next day which can further make sleep more problematic.

In Mother's case, she experiences what can only be labeled "fragmented sleep." Her interrupted pattern of sleep has led to impairment of her pain pathways. She feels pain more easily, is less able to inhibit pain, and develops more frequent neck and backaches. The vicious cycle ensues.

Fifteen months ago, while clearly suffering the ravages of Parkinson's disease, Mom walked through the front doors at GVM on her own two feet. Over the next couple of months, she did everything ~ including breaking through a security door ~ to "get the hell out of that place" ~ to go home. The nursing home could not initially deter our Energizer Bunny.

Effectively bedridden since the beginning of this year, however, she is no longer capable of pursuing an exit strategy or anything else that once mattered; instead, she spends more and more time sleeping her days away.

It has admittedly been unsettling seeing Mother spend so much of her time in sleep. Strangely, it has never seemed as if I have intruded on her privacy as I watch her sleep ~ so much about life in a nursing home requires everyone to forfeit most of what exemplifies a "normal" existence. Over time I have even come to somehow enjoy listening to the quiet cadence of her breathing ~ there is some small comfort in this.

But there is also the natural inclination to spend time lamenting the woman that was; the energetic Mother who could make everyone around her seem slothful as she moved through her days. This is clearly not the life she envisioned for herself ~ a fact which saddens all of us. I have a sense that if Mother were fully aware of her circumstances she would have a lot to say about how she is spending these days. As for the rest of us, we have learned to accept the simple benefit of sharing time together; asleep or not, being with Mother is a gift.

When asking my oldest brother to confirm or dispel my notions about Mom and sleep, he went even further adding he "wasn't altogether certain she ever slept."

He then relayed a forgotten memory from a distant Christmas Eve years ago when Mom "slept" on the floor of our room ~ apparently out of fear we boys would ruin our morning surprise. All night, as we tossed and turned from excitement, Mom was repeatedly heard murmuring the admonishment to, "lie still."

Whether she actually slept that night we will never know.

Rest assured, she was there when we awoke.