I looked at Paul as he went through the motions of the morning and couldn't help wonder what he was thinking. There is no way I can yet understand how he felt.
~~~~~~~~~~
... a progressive disease has robbed you of the very essence of your being. Indeed, every semblance of the life you now enjoy ~ not to mention, the dreams envisioned for your "golden years" ~ have been quashed. Instead of trips planned to visit family and friends, foreign principalities or even a local grocery store, you one day find yourself in a strange, if not, foreboding place. Adding one last insult to injury, you are confined to a wheelchair, robbed of what may well have been the last vestige of any control over your life.
Where are you?
The place into which you have landed is foreign, yet somehow familiar. There is some vague similarity to the sights, smells and pace of hospitals previously visited but there also remains something that is simply ... different.
You soon realize the place is devoid of the normal, comfortable sounds of home ~ no children laughing and squealing while at play, no dogs barking, no water boiling over a stove, no televised football, no music, and not even the curiously familiar sounds of a furnace or dishwasher at work.
Yet, there is a cacophony that percolates through every corridor of the place; it also seems it will never stop.
Call lights blink and "buzz," aides noisily transport metal carts heavy with the smell of food along uncarpeted halls; invisible, unanswerable telephones ring; televisions blare uncontrollably; and, sundry voices ~ not family ~ cry for attention.
"No," you are certain, "this most definitely doesn't feel like home."
Given enough time, you will awaken to a dawning realization the life you once cherished is past.
And, true to the unsettling promise of Thomas Wolf, you eventually understand, "you can't go home again."
~~~~~~~~~~
Mother made this same unhappy transition to a new life within a nursing home two years ago, July 7. Oddly, the intervening years since that somber summer day passed with the "blink of an eye" while also managing to feel like an eternity. I recently came across photographs taken when she first arrived, and found myself shocked by the change that has been visited upon Mother since arriving at GVM. The woman who spends most of her days confined to a bed in Room 807 bears little resemblance to our Mother who, some seven hundred days ago, walked into the nursing home on her own steam. Now confined to a wheel chair, Mother will surely never walk ~ or dance ~ again.
~~~~~~~~~~
One December weekend, I made a decision to bring my portable Bose stereo system to the nursing home. My initial intent was to provide an alternative diversion for Mother who spends most days bored within the isolation of her room. At noon, as a private duty aide arrived to sit with Mom for a few hours, I packed up my "music" and headed for the front door. Having befriended many residents over time, however, I stopped by the dining hall to greet a few friends and fetch coffee. I was almost immediately struck by the din within the dining room; hearing only the sounds of low murmurs as well as the metallic clank of silverware on china, the dining room ~ in the midst of a holiday season ~ was nothing short of oppressive. Not needing permission, I unpacked the Bose, started my iPod and activated a playlist of holiday music.
The effect was nearly instantaneous.
The pall over the room lifted. Most smiled. Many began moving their feet uncontrollably. Some laughed as others cried. And, while a few residents eventually began to sing, others raised their hands overhead in rhythm to the music...
... and one...
Lena, at 95, had been living in the nursing home for many years. Most days it was hard to get even a single syllable response out of her; while she was most always attentive to welcoming "hellos," she rarely offered much in return. Her beloved son, Paul, who had been attending to her daily concerns for years, was understandably one of the few people with whom she would routinely interact but now those moments were becoming rarer with time.
Until that December afternoon...
Lena clearly discovered a wellspring of renewed life within the music that afternoon. This seems to be what happens with most people when exposed to music they truly love. If a person happens onto the classical music listened to by the parents of their youth, the popular music of a bygone era, or even a particularly sentimental favorite holiday song ~ if it was embraced by a person long ago, she will most certainly welcome it with renewed fervor on hearing it again.
Listening to the music that day, Lena's entire countenance suddenly changed. She sat up in her chair, lifted her head, smiled beautifully at Paul and then ~ unexpectedly ~ held out a tiny hand to him. Paul instinctively understood ~ it was not simply a gesture but a request.
Taking a firm hold of Lena's weakened hands, Paul gingerly lifted his frail Mother from the cuirass of her wheelchair,
and then ... they danced.
Over the next few minutes, the entire dining hall was transfixed by what they saw; other family members, residents, and staff watched, applauded and cheered as Paul took the opportunity to share a December dance with his Mother ~ temporarily awakened from a slumber by the effects of the God given wonder that is music.
~~~~~~~~~~
Yesterday, at the base of a gently sloping hillside, Lena was laid to rest, her grave adorned with dozens of pink and white roses.
I looked at Paul as he went through the motions of the morning and couldn’t help wonder what he was thinking. There is no way I can yet understand how he felt.
At the conclusion of the service, Paul, eyes brimming with tears, came to thank me for attending the commemoration of Lena’s life.
And as he walked away, Paul suddenly stopped, turned again to me, and smiled a knowing smile. Since that December afternoon so long ago, he has never failed to remind me of the “last dance” shared with his Mother. It was a moment none present will soon forget ~ nor was it a dance family members will ever have an opportunity to share with our own Mother.
Lena and Paul danced for all of us that day.
I understood the gratitude behind the smile on his face yesterday; he need not have spoken another word.
